Don’t Wait to Report Memory Problems

We’ve come a long way in our understanding of Alzheimer’s disease since the discovery of the condition in the early 1900s, and we’re learning more every day. There are currently almost 100 disease-modifying treatments in clinical trials. However, we still have a way to go when it comes to how people view the condition. Unfortunately, there still exists some stigma around Alzheimer’s that might prevent people from getting the care they need.

The occasional lapse in memory—like forgetting where the car keys are—happens to everyone occasionally. But these instances of slipping cognition may weigh heavier on someone who has a history of Alzheimer’s disease in their family. They may even be more hesitant than someone without a family history of dementia to seek care for their cognitive issues. But experts urge people to report memory problems to their doctor as soon as possible.

“Caring for a family member with cognitive difficulties is demanding, and at times, the family caregiver can feel like they’re battling both the disease and the person,” says Shanita, Director of Operations for Right at Home in Winston-Salem, North Carolina. “Our Right at Home caregivers are there to offer a shoulder to lean on and engage the client in conversation, among other needs. We’ve helped families adapt to a new Alzheimer’s diagnosis by assisting them with a ‘to-do list’ for the client and engaging in activities with them.”

Shanita further explains: “We train our staff to be flexible, and they know that the client may not want assistance at the beginning or even daily. Patience and not getting frustrated is extremely important in working with Alzheimer's clients and their families.”

Right at Home’s approach to helping Alzheimer’s clients and their families is to let them know they don’t have to go through it alone. “We offer a customized care plan with a combination of personal care, companionship and homemaking, and we can also provide respite care,” explains Shanita.

Those with cognitive change require specialized care over time, and Right at Home offers a Dementia and Cognitive Support Program, where the approach is anchored in our mission: to improve the quality of life for those we serve.

“The goal is to support loved ones living with dementia and cognitive change to live at home, independently, for as long as possible,” says Shanita.

Only 25% of older adults experiencing memory problems report their symptoms to their primary care provider. A sense of fear or denial may cause some people to mask their symptoms, but it’s best to bring these concerns to the attention of medical professionals. Family members may also downplay memory problems or personality changes, chalking them up to anxiety, irritability, or the regular process of aging. Telling a doctor about these symptoms offers many benefits:

Rule out other conditions. Thyroid problems, depression, sleep disorders and vitamin deficiency can all mimic the symptoms of Alzheimer’s disease. And if the diagnosis is dementia, it’s important for doctors to identify the type of dementia. Alzheimer’s disease, Lewy body dementia, and frontotemporal dementia all have different causes and treatments.

Plan ahead. After a diagnosis of Alzheimer’s disease, families will want to make sure they have a plan for when the disease progresses. That means having an advance care directive, a healthcare power of attorney, and plans for care support and end-of-life decisions. Families may seek the help of a lawyer to help interpret laws that may vary by state.

Get the best treatment. Delaying diagnosis also means delaying treatment. While there is currently no known cure, lifestyle changes, medication, and memory support strategies can slow the progression of the disease.

Make safe decisions. Without a diagnosis, people with Alzheimer’s may do dangerous activities like driving or providing care for another person. Getting a formal diagnosis will help families and patients understand what precautions to take to keep their loved one safe.

Foster understanding. As with any life-changing illness, there are stages of grief that come with an Alzheimer’s diagnosis. Support groups and education for both the affected person and their families can help them understand the changes to come.

Your health is important, and that includes your mental health. Pay attention to memory changes that don’t feel right and share these concerns with your doctor. The best options for treating and managing any health condition start with giving priority to recognizing changes and sharing them with your physician.