Don’t Wait to Report Memory Problems

We’ve come a long way in our understanding of Alzheimer’s disease since the discovery of the condition in the early 1900s, and we’re learning more every day. There are currently almost 100 disease-modifying treatments in clinical trials. However, we still have a way to go when it comes to how people view the condition. Unfortunately, there still exists some stigma around Alzheimer's that might prevent people from getting the care they need.

The occasional lapse in memory—like forgetting where the car keys are—happens to everyone occasionally. But these instances of slipping cognition may weigh heavier on someone who has a history of Alzheimer’s disease in their family. They may even be more hesitant than someone without a family history of dementia to seek care for their cognitive issues. But experts urge people to report memory problems to their doctor as soon as possible.

Only 25% of older adults experiencing memory problems report their symptoms to their primary care provider. A sense of fear or denial may cause some people to mask their symptoms, but it’s best to bring these concerns to the attention of medical professionals. Family members may also downplay memory problems or personality changes, chalking them up to anxiety, irritability, or the regular process of aging.

Paul Blom is the owner of Right at Home Twin Cities and has more than 22 years assisting people with dementia. He says many people experiencing cognitive decline can mask their symptoms from family members, especially if they live far away. It can be five to ten years before symptoms are enough for family members to notice.

Telling a doctor about these symptoms offers many benefits:

Rule out other conditions. Thyroid problems, depression, sleep disorders and vitamin deficiency can all mimic the symptoms of Alzheimer’s disease. And if the diagnosis is dementia, it’s important for doctors to identify the type of dementia. Alzheimer's disease, Lewy body dementia, and frontotemporal dementia all have different causes and treatments.

Paul encourages people experiencing cognitive decline symptoms to seek out certified dementia practitioners to establish a baseline of testing that will allow for accurate monitoring of the progression of the disease. “The reality is,” Paul says, “there are many forms of dementia and a family physician may not be able to recognize the signs.”

“Alzheimer’s is the most common form of dementia, but it’s not the only one,” Paul says. Getting the correct diagnosis will help families understand the disease progression. For example, with vascular dementia, one can somewhat control the progression of the disease if the vascular conditions can be treated.

Plan ahead. After a diagnosis of Alzheimer’s disease, families will want to make sure they have a plan for when the disease progresses. That means having an advance care directive, a healthcare power of attorney, and plans for care support and end-of-life decisions. Families may seek the help of a lawyer to help interpret laws that may vary by state.

That type of preparation makes family members better caregivers when they know what to expect.

Get the best treatment. Delaying diagnosis also means delaying treatment. While there is currently no known cure, lifestyle changes, medication, and memory support strategies can slow the progression of the disease.

Make safe decisions. Without a diagnosis, people with Alzheimer’s may do dangerous activities like driving or providing care for another person. Getting a formal diagnosis will help families and patients understand what precautions to take to keep their loved one safe.

Foster understanding. As with any life-changing illness, there are stages of grief that come with an Alzheimer’s diagnosis. Support groups and education for both the affected person and their families can help them understand the changes to come.

Paul stresses the importance of support groups. “There is some stigma associated with support groups, suggesting people aren’t strong enough to handle things,” Paul says. “But the reality is that Alzheimer’s affects the entire family group, and there’s some grieving involved.” Support groups offer a type of empathy and understanding that may not be available in a person’s friend group. Paul recommends the Alzhiemer’s Association to find more resources or a support group near you.

Your health is important, and that includes your mental health. Pay attention to memory changes that don’t feel right and share these concerns with your doctor. The best options for treating and managing any health condition start with giving priority to recognizing changes and sharing them with your physician. Contact Right at Home when you or a loved one is ready to explore your caregiving options.