Understanding Hospice Care and the Role of In-Home Assistance

Individuals facing terminal illnesses often face a choice: continue with curative treatments that may lead to discomfort and hospital stays, or choose to prioritize comfort and quality of life, even if it means stopping treatments that are unlikely to succeed. This decision is deeply personal. Choosing hospice does not mean “giving up,” but rather, opting for a more person-centered philosophy of care delivered by a multidisciplinary team of professionals. Importantly, if circumstances change or if a patient decides to pursue aggressive treatments, they have the flexibility to leave hospice care and seek other medical interventions.

The concept of hospice was introduced to the United States in 1963 by Dame Cicely Saunders. She envisioned a new way to care for the dying. Hospice care focuses on comfort and quality of life, rather than cure. It’s typically recommended when a patient is expected to live six months or less, based on their physician’s judgment. The care is not confined to a hospital setting; it can be administered at home, in a hospice center, in a hospital, or in a skilled nursing facility.

Because it’s a relatively new way of thinking about dying, many people are unaware that hospice is an option or who qualifies for it. But the death with dignity movement is spreading, and hospice care is now covered by Medicare, Medicaid, the U.S. Department of Veterans Affairs and most private insurances.

The core philosophy of hospice is to offer compassionate care and support the patient’s emotional and spiritual needs. Services often include pain management, symptom control, psychological support, and spiritual care. But hospice care is not just for the patients—it also helps family members navigate this emotionally complex journey and offers support with the physical and practical challenges of caring for a loved one at the end of life.

Sandi Heintz, owner of Right at Home Northwest Houston, has personal and professional experience with hospice care. When her mother was on hospice care, a caregiver was instrumental in making sure she had the most comfortable environment.

“Simple things, like knowing if the patient prefers the TV on or off, or if they enjoy sitting by a window, can create a more soothing atmosphere,” Sandi says.

The benefits of hospice care

Hospice care provided in the home allows patients to remain in a comfortable, familiar environment while receiving professional medical care. And in-home caregivers have a role to play in this process, as well. Studies show that patients who are already receiving some form of in-home care are more likely to use hospice services.

Here are several things an in-home caregiver can do to assist in the hospice process.

• Assist with the patient’s personal hygiene, including bathing, dressing, and grooming.
• Carefully position and maneuver the patient in bed to ensure comfort and safety.
• Aid the patient in moving between the bed, chairs, and bathroom.
• Handle laundry, perform housekeeping tasks, and maintain the cleanliness and order of the patient’s bedding.
• Run essential errands, such as collecting prescriptions and grocery shopping.
• Prepare meals and drinks according to the guidelines set by the hospice care team.
• Offer companionship and a comforting presence.
• Provide relief for family members by staying with the patient, allowing them time to rest and recharge.
• Complete light housekeeping tasks so family members can be more present with their loved one.

How in-home care supports families

Choosing hospice care, particularly in-home care, can be a profound decision that benefits both the patient and their loved ones. It ensures that patients spend their final months in dignity and comfort, surrounded by their loved ones in a familiar environment.

“Every hospice has a physician who manages care,” but when to begin hospice depends on the individual's situation. Families should ask themselves, ‘Is it time for a conversation about hospice care? Should the goal of care now shift so the focus is on comfort and quality of life?’” These conversations are essential when facing a terminal diagnosis.

For families, the comprehensive support provided by hospice professionals is invaluable, helping them navigate one of life’s most challenging passages with grace and compassion.

“Because families are so involved in caregiving,” she explains, “providing them with respite is essential, allowing them to spend meaningful time with their loved ones.”

And in-home caregivers can play an important role in the overall hospice care team, providing assistance, companionship, and housekeeping for hospice patients and grieving families alike.

“Caregiving can sometimes take away from the grieving process,” says Sandi, “so having that final bonding time is crucial.” It’s also beneficial to have someone around who is familiar with the day-to-day challenges that are part of providing care and support to a loved one near the end of life.

“Experienced caregivers can notice physiological changes and help guide the family through the end-of-life process, which can be peaceful when handled well,” Sandi says. An experienced caregiver might suggest calling the chaplain, social worker, or nurse at the appropriate time.

The best time to learn about hospice care is before you need it. For anyone considering hospice care, it’s important to discuss with healthcare providers early to plan the best possible care strategy for your loved one.

Right at Home care experts work with families and trusted hospice care teams to promote the best possible quality of life for people with a life-limiting illness. Contact Sandi and ask for a care consultation today.